**PLEASE NOTE this site is nothing to do with me, I'm just trying to let people know it's now there :) **I've stuck this in both the Main and UK sections in the hope of reaching as many UK people as possible. The official UK CAH Support group has just redone their website, and now has a lot of information available, as well as full chat boards that are regularly checked by committee members. I'd recommend UK residents have a look, it's a useful point of contact for those needing information at getting help in the UK, as well as CAH generally.
Also worth noting is that there is a Florinef petition running, regarding the storage changes which are causing inconvenience for many people with CAH, details and how to sign are on the site.
It's at http://www.livingwithcah.com and the boards are at http://www.livingwithcah.com/Forums/index.php
Regards
Rick
