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re: Florinef storage - to Wigan Sep. 3rd, 2008 8:13am
Hi Wigan
There is only one manufacturer of Florinef in the UK (Bristol-Myers Squibb), so the tablets are the same whether you have a private prescripton or not. They only started manufacturing the tablets that need refrigerating early this year. If you only receive 30 days supply at a time, as you say, you are of course quite safe to keep your tablets at room temperature.
GP's aren't all bad, although I agree very few of them know anything about CAH. They shouldn't even try to advise a patient with this condition though, as patients need to be monitored and treated by an endocrinologist, preferably one who has a lot of experience in CAH!