Congenital Adrenal Hyperplasia

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Changes to Florinef storage - to Sue and any1 else
Sep. 3rd, 2008   4:05pm
Hiya :-)

I think this is all part of the problem often to many people, doctors included all saying different things or at least interpreting differently.
I have kept them out of the fridge when I've been on holiday, long flights and when I work away. I think sometimes drug companies frighten people, they keep the tabs out of the fridge and any problems they worry its because of the tablets. You can tell people are worried on this site because if they wasn't they wouldn't keep asking the questions about them and what to do if they have a long flight. Which is a shame.

Dr's advise lots of things that isn't in the book, I am a female and have SWCAH and yet have no testosterone I have to take striant for that. Yet straight out the CAH hand book it talks about high levels of testosterone in CAH females.

Anyway best go and make me tea

Wigan :-)

Wigan




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