Congenital Adrenal Hyperplasia

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re: re: Curious: What was the reaction of you or yourDr when you saw your daughters unique anatomy
Jan. 12th, 2005   4:52am

The child Beth does not have CAH, her appendage is just very large, much larger than would be concidered "normal" for a baby. It is a family trait because (as I found out latter) most of the women and girls in Angela's family are well endowed clitorally speaking, it is just genetic and not life threatening in anyway. And it only effects the clitoris , the labia and urethra are not altered in the way that would be classified as "ambiiguous".

I also come to realize that Angela has been gping to the same OBGYN for years and years and years, he delivered her 1st child so obviosuly he was not surprised to see her daughter have and enlarged clit, so that is probably why he said nothing. And the other nurses on the other hand had to look after her for 18 -19 hours so I am sure they too have seen what sized clit Angela had and hensce said nothing about the daughter when she was born. Only the pediatritian had NOT seen Angela, and so he was the only one to mention it in regards to her daughter.

And I feel if it is not broke don't fix it, under normal circumstances. Beth will not have any problems with puberty. I understand some times it is MEDICALLY nessasary to do surgery so that things work right. But I also know alot of surgery is for cosmetic reasons only, and I have a problem with only cosmetic surgery due to the possible risk to loss of sensation in the future.

And once agian, i was curious about the reactions of Drs when ambigues genitals or enlarged clitoris were 1st witnessed. Because the Drs and nurses in my friedns case (Angela) did not act at all the way I envisioned they would after I saw  what Beth had between her legs. I was very very surprised and the thought crossed my mind, at least in some places drs are more understanding about such issues.

Stephaine




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