Congenital Adrenal Hyperplasia

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re: re: re: re: to aimee
Feb. 26th, 2005   6:39pm

I wrote that I was sorry to Anne but it wasn't good enough for you ladies and I can respect that. I understand people with conditons shouldn't speak up or have fun with it because that is offensive to the "normal" population that doesn't want to get anything and that's why it's talked about as an unfortunate condition that people are devastated about when it's just life. I wanted to show CAH as something you can have respect and dignity about plus wanted a place to cope. As long as those pictures didn't happen to your kids everything is cool but if it wasn't for those pictures medical people wouldn't learn and Tim never would of had a hobby.  I am elated at how far CAH has come and how far it will go to make things better.

It's amazing you give me that much power Jen that you think that I'm brutel and berating but wild how you thought I was also crying you can't see that I'm just a person with CAH who was looking for a place for support and to have self-esteem about their conditon? and wants to see CAH elavated to something better than what it is? Better management? A cure? Better representation in the media ...dignity.

People do and say things that others take offense to and I am me and you are you. You only fely enough to respond to this post and not any other and for that I'm sad but I'll get over it.

   

Aimee




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