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I see that you find me offensive and I can respect that. The person from the caresfoundation has been reading my posts from the last three years and told me how I was great getting my point across about having CAH and she wanted me to write something for them because of your statements I should decline that offer? Other people have written that they appreciate what I write "the good, bad and the ugly" and that they appreciate my candor. Obviously you don't and neither does Anne which is OK this is the Internet and communication gets lost. She was perhaps at point A and I'm already at point E and wanting desperately for CAH to be seen in a "normal light" as other medical conditions are. Dogs do get CAH and I know how they get it too w/ breeding lines that have crossed a little to much I don't think she would of liked me to write that in the post either but in reality every person has at least 5 genetic conditions just waiting to come out in further generations. H***, Late Onset CAH is one in a hundred people and the general public doesn't know about it ...amazing... how many people aren't getting diagnosed and feeling like cr** because of it. That makes me passionate and if that is bad I'm sorry because I want more people to know about CAH in people and not just something "funny" as one medical person put it. A person w/ CAH has feelings about it whereas far as I know animals don't and that was what I was trying to bring across.
" I was raised ...in the process they should be careful in the manner that they do it in" that is based on individuals different socioeconomic background, cultural expectation, and what part of the country that they live in. Also throw in personal assumptions about this birth defect or others and how it "should" be discussed and you just aren't going to please everyone all the time.
"I was raised...in the process they should be careful in the manner that they do it in" I'd tell you about all the honest comments that have been made about CAH by doctors, nurses, med students and techs to me and behind close doors where I could hear them but I don't want to upset you. When people are learning, sharing information, just trying to get their opinion across, or trying to give support "should" is different to everyone.
I write with feeling ...sorry I do apologize if I offend anyone and I also drop it and go on. The NIH is doing great studies to cure CAH and I've always said that as soon as they find a cure for diabetes CAH is next. They've done studies about turning people w/ CAH into carriers which is wild. The one doctor stated that a cure for CAH will be in her life time ---Fabulous AND SHE'S OLD TOO LOL her lifetime is our lifetime.
Maybe this has become a site only for parents to get support about having a kid with CAH and not a site for support for people w/ CAH? I think Danny likes that is for everyone?
