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re: re: re: re: re: re: to JENNIFER Mar. 1st, 2005 12:03am
Hi Jennifer.... I have a question to ask you about why you feel it was OK for Timid to post on this board where so many Parents with children feel he does not come across as REALLY being interested IN CAH! This is NOT a PARENTS Board.... This is not aVETS board. This is not a lets belittle people board and it is not YOUR board to judge other peoples posts for viewing. HELLLLLOOOOOO! Now how agressive do you REALLY think you came across on a Board on the INTERNET. Like we are suppose to be intimidated on how HARD you punched the keys or something. We do like to have controversy on some issues....but when another fellow being is expressing there hurt or pain at being compared to an animal and is TRYING to get there point across about THERE pain and experience with CAH. You have NO RIGHT to make this person feel bad about there candor in writing. What makes your style of expression on the net the RIGHT way to come across ? Aimee has been honest and forthcoming with information that would take most people half there life to share with us. If you don't like what she says skip that post! Don't take it upon your self to continue to berate someone that is being helpful or using the board for support. The old saying about DON"T JUDGE a man till you walk a mile in his moccasins. You may have had it rough in you life...COUGH COUGH who has not had it rough in the cah world. Did you ever sit by a childs bedside and pray for God to let your baby live as you watch them stuggling on a ventilator ? Seen there little bodies swollen twice there size because of water retention in ICU? See them with ther leg cut open from knee to ankle on both sides from Compartment syndrome during an adrenal crisisa blood tranfusion. THEN some one asks does this happen too animals? Well yes I guess it does ..... But we are not watching Bambi here. We are talking REAL LIFE and DEATH situations and peole who live it. All Aimee was saying is get a grip folks...... show a little compassion to the REAL world. There is no reason for being ugly to someone that has shown her true sense to this disorder and helped us all ! Sincerely
