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You are so great on this board! I love to read your posts b/c you say what I want to say but sometimes get it wrong. Aimee is a wealth of info & insight as well. While Betsy continues her crusade to have our child live with no vaginal openings & fused labias (yes Betsy, when you trash "the surgery" you are trashing all of it in some of our minds because the surgery is a lot more to us parents, we are looking at the whole thing.) I am going to forward MY crusade to get the medical community & the public aware that there is a condition outthere called CAH, that affects boys & girls and without proper & prompt treatment can be deadly. I want my daughters teachers & school nurses to be as aware of signs to watch out for with her CAH as they are with their diabetic students. When or if a SWCAH girl gets surgery is an family's indivdual decision. My only position on surgery is that the parents need to collect as much info as possible. If they feel it is time at 2 to have it done or 12, fine. Jessica P.S. Amiee, I hope you are doing well.
