I asked why he was here. When he asked about staying here, I wrote it wasn't my board to decide and also in other posts not for him to use me by name in an example being compared to goats.
If he wants research fine and there are plenty of studies w/ CAH but at this site I really wanted to thought of as a person. Though it was strange that he was into looking at pictures of how I was born. Someone a while ago pointed out my poor spelling and even went so far as to give a link of a flower that matched the misspell word instead of the word I was trying to write. Yes, that up set me but I went on from that. Parents also wrote how they weren't pleased with Tim here and nobody said anything about them which is Ok.
It would be nice to find somewhere for support and not be someone's curiosity and I also wrote that I knew Tim meant no offense and I wrote in the post to Anne that it was just my opinion and feelings.
Cherry has a child born like me and we don't know each other but I feel that Cherry and others have more experience about life and well with respect but some are just sheltered and keep feeling offended which is sad.
The things people have said to my face and behind close doors where I could hear them about CAH, genitals and or surgery as a result of it ...well... I don't know if you guys could handle that if someone responds on a web site in a manner that wasn't what you wanted and that makes you not want to ask anything . People come from different perspectives and that's all.
All I want for CAH is a little more dignity and if that is rude I am sorry to the ones that don't get me. The lady from caresfoundation asked me to write and I'm glad that you felt the need "wondering" to offer on this thread because makes me realize that maybe the way that I write isn't good for the cares foundation? Like your Feedback on that. If you would like me banned then post that. The way I write is the way I write "a sense of superiority"? ummm trying to share personal experience and limited knowlege about CAH and I really mean limited h*** I was at my Endo today and he was telling me the numbers for the bloodwork but I don't even know what good or bad is because I know that as long as he is happy with that then so am I. "Rudeness"? trying to share how just one person feels about having CAH in hopes that someone can relate to it or make them think and sometimes that always doesn't work in real life or the medium of the Internet.
"Either you get it or you don't" Dr.Phil
