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ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS!
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Return to Page 7Post reply
Dana?
Jun. 3rd, 2005 9:33pm
That's one of the most bizarre questions I have been asked in a long time. First, you are assuming that the drug makes a person---does whatever drugs you are taking or not taking change your sexual orientation in any way? I knew I was a lesbian as a child---probably 8 or 9 although I didn't know what it was called nor did I know the language for it. I was simply a little kid who knew I liked girls in the same way most other girls liked boys. Of course, it wasn't sexual or anything like along that line that I knew of. I was too traumatized by the repeated genital exams by then to even think I would some day want to be sexual with someone, even in childhood fantasy/make believe way--that was a trauma that lasted in some ways until adulthood--all the while knowing darn sure I was a lesbian or whatever it was called in my mind. That was long before I was ever prescribed florinef--an event that didn't occur until I was in my teens. It's only as an adult (and somewhat recently) that I felt I learned enough to reliably direct my own medicines according to what fits my body. I was a lesbian long before I ever took up that task. I don't know where you get off on saying that I am non-compliant. It's an awfully big word with many implications. For what it worth (file this away as you seem to know me better than I know myself sometimes), I still take prednisone usually twice daily in dosages that usually approximate what was once prescribed but at different patterns--including some days when I take much less and some days where I take more--again, depending on how I feel from day to day and my daily activities. Once you figure it out, it's not that hard; since you don't have CAH, you probably don't have a clue what the effects of the drugs are on day to day quality of living and health beyond having perfect levels---just like you and anyone else without CAH have no clue what the implications of our genitals are, surgery or no surgery. Look at all the pictures you want but I challenge you or anyone to track down the woman in the picture so many here claim to be so familiar with and ask the woman who owns the body how she feels about it. Assuming anything otherwise is a bit judgemental. Digressing a bit, so is the assumptions that women without surgery could never feel like a "real woman" and could never have heterosexual sex if she desired. That's nothing but an insult to all women with CAH---that she isn't good enough unless she has pretty genitals according to the standards of others who will never have sex with her. Most interestingly is the only time I was overweight in my life was years ago when I used to follow doc's advice quite closely and had one so neurotically consumed by making sure my levels were within the ranges dictated by his magic books. It's only the florinef I don't take and since I have weaned myself off of it I am doing quite wonderful. I have less body hair than I ever did, I have less thinning of my hair which was becoming a problem for me, I have less depression than I have in the past (for when it does creep in--I take a natural supplement called SAM-e and it works great for me and is quick acting so none of this taking a chemical for two months before seeing an improvement), I haven't had oily skin or a zit since I stopped taking it and my blood pressure is where it should be. I no longer sweat heavily when I sleep (which always bugged girlfriends in the past) and I don't get ankle bloating, like I used to when "following doctors orders". You can figure out the implications of what I am after myself. However, I also am careful to eat a well-balanced diet and in fact, some days, eat like a pig especially now that spring and early season locally grown organic veggies are coming in. Some of my friends watch in amazement at how much I eat. I don't gain weight from it and it's always a source of many questions amongst my more weight-challenged friends. I make sure I consume an adequate amount of salt---the good stuff that provides other essential trace minerals and not the morton stuff sold at most markets. Contrary to popular thought here, I have a very high threshold for anger and am way more laid back rather than harboring feelings of anger or aggression. Once a day I consume a small cup of licorice root tea (I grow my own organically now) which I think helps alot as well. It took a while for me to figure out the dosage on it but what I am taking now seems to be doing me quite good. Does feeling well without all the side effects I see so many write about here still qualify in your mind as being non-compliant? Or, would it be better to follow docs orders and feel like garbage everyday and be fat?
Betsy
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