(quietly) Hey Liz,
: ) You're very lucky to have meet many people with CAH throughout the years. If you are comfortable to post -What type of CAH do you have? or are you a parent? If I may direct your attention to my first post I'm sorry that you saw it as a sweeping statement let me post part again so that maybe you'll get that I also ackknowledge what you are posting.
"Everyone that I've talked with on and off the board has experience with drug or alcohol use or abuse. Some because of how they were born and others because family members respectfully and out of human nature were/are ashamed, shocked of the one part of some girls with external genitals that are ambiguous and I assume and hope...know there are many, many out there that don't even consider any of this..."
YEP, I did have a little Irish courage (smile) that brought out my geman rightousness of H*** yes I'm finally goingto tell my group of friends the whole CAH kettle of how I was born : ) I was for the most part : P pretty sober and happy when I partied because my gosh! tons of cops down here.
But has there been times where before or after an Endo appointment or thinking about the of course necessary CAH treatment and learning from doctors or soemthing someone said about CAH or didnt say blah blah that I didn't go on a bender because of that? errr no and of course it was a bad choice but after awhile being numb feels good psstt but in reality ...only kidding yourself. The condition it self isn't that bad but the very nature of the treatment having the surgery even though it needed to be done, degrading exams, what others being only human think about it meaning just the external genital part with some girl babies ....and golly gee heck just having a condition yes, I would drink about that and get deep. Others have selfwill, respect but nobody plans on any of this means to blames to but things may or may not happen and i've always wantedto put this out there for thers to explore the topic in how they see fit.
All of this got me thinking Liz and I don't know if you read but I had cancer last year and I hope it's gone : 0 but I pulled into a little pub to get something for luch and two ladies in medical scrubs were getting plowed and they wondered why I was staring . The one stated come one drink with us and I'm like dealt with cancer and they go us too! ten years ago! soooo what would you like and finally I stammered three years sober ....and ummm some other medical conditions anyway we all had a great conversation about cancer just the same.
When the study from cares about carriers and depression came out! that was so cool and made me wonder about how one thing relates to another.
For myself the anger would go away with the drinking which of course that is a crutch but also you then are feathered into a social group plus ya might develope more than a want but a need for alchohol. The if you can finish of more beer than anyone else you might have a problem and for a little while it was i can drink better than someone without CAH which is bad but hey seemed logical at the time.
I'm glad you can't relate to this and I'm glad others are out there w/ CAH that of course don't either. I don't relate to the gender studies myself : )
Do you have any conditions Liz?
the only thingthat I know about my bio mother on the emtonal side 1) a pretty smart lady for knowing she wasn't able to take care of me and 2) she was quiet and had hard time expressing her feelings.
My thinking with all this was to explore the topic and benefit those in the future in that maybe they don't have to turn this way at all. Period : )
peace,
Aimee
