YESSS THIS is why I posted all this see ??? or maybe you don't know but groups like the Intersex Society of North America which like medical insitutions from Michigan, New York, and many other use CAH under the term Intersex and are in schools lecturing to future med students on this by the way how do you all feel about CAH being used for Intersex ? Yes or No? and are will to write to them to go Here I am and why are you all putting CAH out there only in this way. Dr. Vilain wrote something like it is an "accomplishment for intersex people to even get married" just on that alone CAH an Intersex condition?
I got thinking about all this along time ago when I would read these studies about CAH and how sex was traumatic? and I'm thinking to myself even with the clitorectomy I'm not that bad in that department and I've turned down marriage offers also. Have I gone on binge drinking as it relates to CAH yep..was that good? but at the time well errr yes... I'm an expressive person and would that of been a better time period spent painting or writing you bet and I rationalized well dancing and drinking because I'm a very good dancer also BUT slowly the dancing became less and the drinking more BUT been three years sober and seeing others toss back wine after dealing with their cancer was making me wonder and then.....errrr nope no way. I like this thread also and if someone younger may gather something positive from it then awesome.
Thanks not to sure about my cancer but will know in a month if it's a reccurance or just tearing from the radiation which they stated takes a long, long time to heal. Right now there is bleeding through the clitorectomy with the scar tightening up even more and on the sides you can see skin tears also. Wild really and i think screw al this ..just go get something to drink and then i thought is that what you really want to do?
I was trying to approach all this from sociocultural perspective also.
You brought up the Cross and awhile back I mentioned in a post that I read something in Reader's Digest about as a kid. A person talking with God going into a room and picking out a small cross and that was the size of the person's troubles. Someone on here "Bishop" posted that story to me and that was fabulous. Thanks again Bishop!
I know people that did everything right and they still got cancer plus went for screening all the time ...they didn't make it and you have to go on for them just like you must go on for all the kids with CAH that never got to be because the medical community doesn't know that much about CAH I hope that you can all find it in your hearts to tell your stories also and thus help people outside of this message board learn about more with CAH really feel.
I think some are more prone to do somethings or are put more in a position to. But it was my hope that by "linking" with those w/ CAH by support that maybe that doesn't have to be whewww. The flight or fight reponse is very interesting to me AND READING ABOUT a little girl cutting reading about depression in CAH and my experience of cancer symptoms being minimized countless times by Drs because CAH? she must be depressed whereas my vists to countless shrinks proved no depression but frustration and anger. I just want it better for the next generation of those with CAH and seeing a broader range of what it is and yes include those of is that might grab the "bottle" for awhile to but then leave it or even don't but also have other voices then maybe it would be easier for "issues" in regards to CAH to be idenitified then help US! All this gender stuff about CAH, I guess helps some but it's time to expand and take our condition to where we need it to be : ) Is there a place for this word INTERSEX that includes CAH? or not if 9 out of ten don't agree with it but number ten does then does the word stay or go? would love your thoughts and you ladies do have a voice.
I respect all voices when it comes to CAH.
***OK next topic which I've wanted to address and that is fitness in regard to CAH ...I've posted from time to time how I've stayed fit and gasp also how I haven't ...it would be great to see others post about this matter and I think the Men have done a better job in this department Like IAN ...it's great to write that you are fit but even better to post the how and why to benefit maybe the next with CAH that isn't coping as well or heck maybe some parents or Grandparents...I'm getting into YOGA these days ... thanks Cherry for picking up on the method to my madness. I'm just an expressive little nut that wonders why she sucked at math even though people with CAH are supposed to be good well not math that could make me money or increase my "drinking habit at the time" I learned to budget for alchohol and no I'm not proud about that one but when I stopped drinking really because the prices were going up, I kept my budget concept.
I think it's important that everyone with CAH and parents express their views about it on numerous topics and levels because people there are others out there that are talking for us that don't even have CAH and aren't putting out there what wil help all.
For the most part i don't even think about CAH and even as I get older, I wonder more about other conditions that might be there even more but still it's good to be able to express about CAH. Could it be worse heck yes but it's still ok to talk about : ) Sometimes, I get the feeling that when it comes to CAH everyone is like sock puppets Alright? Alright? done.
What side effects did ya have?
THANKS Aimee
