Congenital Adrenal Hyperplasia

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re: re: re: A couple of Abstracts...also
Feb. 11th, 2006   6:55pm

I've been trying to figure out if I had any kind of surgery when I was little ... I know I had a cystoscopy when I was seven because my urethra was too small - under general anesthesia and I was hospitalized for two or three days ... I wasn't in great pain, just stinging.  I don't look completely normal, but almost ... my vagina is kind of small ( I could never deliver a child) and my uterus tipped, but no one has ever discussed this with me...  is there a website with pictures?  I'll try to look without fainting ....  The hospital was in Orange County, CA, I believe.

My urethra is right next to my vaginal opening, and I developed interstitial cystitis, which I got relief from when I started on tricyclic antidepresents.  Sex was okay (when I had it, 20 years ago.)

I certainly don't believe in any surgery that would reduce sensation.  I was diagnosed with an incomplete form of adrenal hyperplasia, and was on prednisone for a few months.  I felt better (woke up feeling rested), then moved, and wasn't able to find a doctor who would renew my prescription without tests I couldn't afford.  I've been in the hospital a few times with electrolyte imbalances, and have had several tests where my cortisol is 2.6.  ????  My androstenedion was 457, testosterone 120, progesterone too low to measure.  Does this suggest a certain type of CAH?

 

 

margaret




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