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re: The good, the bad and the ugly Feb. 25th, 2006 10:18am
Dear AMZ,
Would like to read more about how you feel about having CAH and what you would like to see happen. Do you feel that a group muzzled what you had to say?
I've talked with over ten people with CAH and pretty much had the same feelings that they did ...found someone that was at the same hospital that I was and went to the same endo clinic - we shared word for word the same feelings.
Groups? Was told the same that my experience wasn't the norm ...the hurt that caused - it is my experience w/ CAH and that really should of been good enough.
People that went through cancer would never been treated that way - Every feeling and fear good through cancer was validated. People with Celiac Sprue- everything is validated. Thyroid conditions also - thyroid support groups ? they don't seperate each other out.
