I guess what I wanted to say was I used a human for my own experiment because of all the focus that doctors have about CAH and the genital area.
Maybe you were lucky and weren't subjected to studies and medical school for the overall learning process about our condition. But, I do think we all share that curiosity of my gosh what is he or she going to say.
I remember when I was 20, this woman endo looked at me and said with the most bland personality (no smile) , " What are you going to tell a boyfriend about all this" talk about anxiety provoking. So, I found a nice guy training in the medical field and used him as a medical tool for my own curiosity and I do regret that.....it was nothing more than yep it works and he could care less about the CAH ...ummm and really me actually. That one I never brought up CAH or anything.
Later on talking w/ one of the medical people that had a hand early in my CAH management- The main interest to him and it hurst that he said it was "Ohhh, you sleep with men"? it was like check that one off the CAH list.
I hate this condition sometimes and other times it isn't on the radar screen. I just really wanted to write if you wait or don't that you do that for yourself and nobody else.....I couldn't see doing anything like this at 17 but like you I was curious about the future and the CAH connection because I've talking w/ others that have CAH and we've talking about what you have brought up here.
I care because I know the hurt that is caused ...ehh felt after someone you feel something for says terrible things about CAH and for me even w/ some sort of maturity those comments were hard but most others aren't like that. They'll talk about a relative that has this or that- that's why I've found the more you really, really , really talk with someone (real views) and get to also know their family then talking about CAH and also things like STD tests are easier.
Plus, I wanted to write that when I bring up conditions and this works for me ..I don't make it a big bombombom thing but I'm just real and light about it- Oh have ya ever been tested for STD'S because condoms aren't perfect and ummm people have STD'S and they have no idea that they may be passing things on. I keep things light Sooo wanna get a Starbucks next to that planned parenthood over there and oh hey so what do you know about the endocrine system? I keep it light because ....it sinks in and they know that You are you and are much more than this condition - CAH stops you from doing nothing but clue him in about the adrenal crisis : )
I wish this type of stuff would be part of those groups but I got ...not my little CAHer
I've babbled on and I'll be quiet now.
