Congenital Adrenal Hyperplasia

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re: clitoris increasing in size with age
Apr. 8th, 2006   6:27am
Hi J Wood, one minute you aren't having surgery....and then you are. I know how that feels.
My daughter isn't in the same age group but this is my recent experience. I was referred to a paed-urologist when my daughter was around 3 months of age. I left her office with her giving me the impression that we would not contemplate surgery until just before menstruation.I felt that the "decision" was made (for me, by an expert at that!) and I didn't have to "worry" about it for some time.
At our follow-up appointment, one year later, she stated that the clitoris would just get bigger and she booked us for surgery then and there. I didn't have time for any questions...I think my mind was just reeling. All that worry and decision making that had been filed away for later suddenly became very real. It's such a difficult and challenging process to work through, trying to reach that decion to achieve the best possible outcome for those whom we want to love,protect and spare any harm/pain.
Of course we take comfort from all the messages posted where things have turned out wonderfully...what else can we do when we are making a decision that has to be made for those we have an in-built sense to protect at all costs.I personally, am taking the most solace from the fact that they say the younger you are the quicker the healing. (AS STATED, I SAID 'PERSONALLY'....CAN EVERYONE PLEASE REFRAIN FROM RESPONDING NEGATIVELY THIS IS A STRESSFUL ENOUGH DECISION TO MAKE WITHOUT ANY NEGATIVITY).
Anyway, I wasn't convinced that my Dr. had enough experience, living in a smaller city and we will be travelling 800kms to seek out what I hope, will be the person of most expertise for her. Some consolation for you, during this REALLY difficult decision making time, is that you obviously have a great Dr. I have only read great things about him on this message board.

Once I made the decision (or at least agreed to it and accepted it myself)a lot of the stress and worry went away. Then when I made the decision about chasing and organizing a different Dr., more went away.
At the moment I am not thinking about it (my form of self-defense to save me from going crazy with worry) until we are due to pack up (5 weeks) and go. Of course it's always 'there', but I tell myself I'm not thinking about it anyway!

As many people have stated previously: you are doing the best thing you can possibly do (surgery or not)with all the love and best intentions/hopes possible for your daughter.

Take comfort from the knowledge you are trying your best.




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