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Yes. I posted on the main board about the surgery and decided against the clitotoplasty because of fear of losing sensation. I did deicide to go through with the vaginoplasty for furture medical reasons like pap smears and such. Even though I am still uncomfortable with my clitoris I have a lover that loves me for the person I am and has no problem with the fact that my clitoris is larger than normal.
I had a clitoroplasty done at a young age and the fact the it's still larger I believe that I must have been at a prader 4 because the doctors told my parents that I was a boy and believed so for two weeks. My parents had to make a choice if I was going to be a boy or a girl because they didn't check my anatomy first and made my parents make the choice before they did that. I guess that's how it worked in '83? Anyway my parents decided for me to be a girl because the doctor said that there was a high chance of testicular cancer. So I had the clitoroplasty and they found out that I was indeed a girl. I have a uterus, cervix and ovaries and no testicles. Thankfully my parents made the right decision.
Up until this year I held somewhat of a grudge against my mother for not having the vaginoplasty done but I realize why she let it be my decision. When I was 15 I spoke with a urologist about getting the surgery done but I wasn't taking my meds the right way so my levels were all over the place. Now my meds are regulated and my levels are right for me to get my surgery so I am going to be having the surgery hopefully soon.
If I have to give any advice (which I don't believe I'm the person who should be doing it since I don't know much about CAH) I think that ALL parents should tell their children about the disease instead of letting them find out by themseleves. I found out and my mother never talked to me about it really. She would tell me the basics but I think she was waiting until I got older. Well when I was 19 she passed away and was never able to tell me much about CAH and what she knew. Now I'm out to learn everything I can about it so I can better educate myself.
