I'm not very good at choosing words or trying to explain what I mean so here goes:

Tell me what you think our limiations are having & living with any form of CAH.  I know everyone says we/our children can be normal and do live normal lives but do we/our kids???  What are the obstacles & challenges we have to face??

Or do you think there are no limitations or challenges????

I'm just curious to what everyone thinks. It is a 7/24 worry for a parent & what are kids go thru with the blood work, sickness, adrenal crisis etc.

My grandson who is 9 yrs old has SWCAH. I know how I feel but would like to know how others feel about this.

thank you in advance

Jenny

 

 

 

 

 

Jenny: RE: Limitations OF CAH (Jul. 12th, 2006   6:31pm)
Dee: re: RE: Limitations OF CAH (Jul. 13th, 2006   11:43pm)
karenp: re: RE: Limitations OF CAH (Aug. 5th, 2006   8:42pm)
Mark and Teresa Smith: re: RE: Limitations OF CAH (Aug. 17th, 2006   9:55am)
Sam: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:31pm)
Sam: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:32pm)
Sam: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:33pm)
Sam: re: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:34pm)
Sam: re: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:36pm)
Sam: re: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:37pm)
Sam: re: re: RE: Limitations OF CAH (Nov. 4th, 2006   5:37pm)