Congenital Adrenal Hyperplasia

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re: to Aime
Sep. 11th, 2006   6:03pm

My brain was wired for the genitals that I was born with. 

 With respect but scary when yo uassume what most girls would choose. I have no idea what anyone would choose.

I would worry 1) that your child's Endo was talking about another case in that manner becasue each case and family is different  2) that an eight year old girl is so "motivated" for this....makes you wonder about the parents and the endo.

I remember one parent posting that the child grew into what she was born with.

I understand really I do ....little girls aren't supposed to have anything erect in some minds  and that is also tramatizing to some. To call that bothersome is something I can't relate to becauseI never got the opportunity to keep what you would consider bothersome.

I wrote again because yes, I stand by what I wrote in thread that you mentioned and I guess you really didn't understand where I was coming from because now it's like I have to defend it here . Innocense- Had so many adults pawing in my pants when the other children were reading Ranger Rick.

The biggest worry an eight year old should have is riding her pony or what to wear to school.

 I had the clitorectomy, vaginoplasty, urethroplasty done to me when I was five and was more virilized that your daughter. They sliced me open for the uterus.

Yes a sedative because no matter how wonderful the Dr. is and I also think Dr. Poppas is wonder...no reason not to. 

The people at the U of Mich also all thought the chief of ped surgery was wonderful but really just a man and I was his creation. No, I don't wish to remenber his smiling face over me as he checked his work. I was all their idea and not mind ....get it J ? My Brain was wired for the genitals that I was born with and they forced me as a child into something else. No smile here but I really understand that I had no choice . See treat the adrenal gland condition and surgery for a female born as virlized as me needs surgery before a period comes because no way would it slide through as one mother wrote me who had a daughter born like me "eww groos chicks with D#### and the polite thing to say is prader five. So yes, if they treat me- my adrenal gland - a female that only has female sex organs and external genitals what the heck is that then yep surgery  no choice there and a medical need because the blood isn't getting through what look like a cross between a phallus/clitoris. No choice in the surgery J and the perspective from the U of Mich those smart guys there is that this is and always was adrenal gland focus. Fix the adrenal gland then fix the rest of the pathway the endocrine condition caused. Makes sense to me also. But lets remember that it's not medicine if one destroys the soul of the patient. In their aggressiveness to learn and turn around and help with the CAH which medically wise did excellent for that time period and know because i don't have hald the problems on the board but the thing they forgot about and since apologized for and learned from is that in the zeal to learn about a condition and do a good job that they forgot about the patients dignity. I felt like I was malled by those students and again with the ped endo who by the way is a classy man. The students saw an agreeable child to learn from and I just wanted to crupple in a corner and die after those exams. 

I've never written that I wasn't happy and one shouldn't assume that because I think I've coped with a condition that really wasn't known in the 70's as well as anyone.

I really J can't understand where you are coming from but I've tried to give support about whatever you do.

peace and felt you needed a longer explanation : )

 

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