Hi Diana,
Even the correct medical dose may not stop the excessive hair and if some parents need the doctors to always look and pull apart then that is what it is- a choice of treatment and other doctors will confer with what the parents report. All the talking in the worls at wahtever level doesn't change any of this. The even wrote in my medical record s that I was bubbly and out going girl. They needed to see what they wanted to see. One can saw we need to do this and this and this to you and people can still have feeling about it because the nature of the condition. Not a child after what is done to you. My brain was wired for the genitals that I was born with and they are trying to fix you ..put you back into a box but yet your brain is still inline with what they werereally happy to slice off. These people slice me up and did what they did and are happy that I slept with men - many people (ghosts in white coats) walking into that bedroom with me. The first person that I thought of two years ago when I had the cancer was the man that did the genital surgery and I had spoken to him before. I knew that old man would get me to the people that I needed if I couldn't find them down here and I found the people that I needed but after talking with the surgeon from way back awhile ago he did without asking offer up whereto go for cancer help. I can tell you don't get where I'm coming from but it really is just about coping with a condition. All the talking that Mom does and I love my Mommy too - doesn't change the fact of &#$^&^# still have the condition and go through things that bother older people too. I like that things are better for CAH in many ways. The ped endo at my local Hospital actually studied at the U of Mich and imagine if one of the notes from my case little peion idiot me actually helped him help one of his patients today. That makes it worth this condition or any condition. I wasn't undersurpresses and had puberty at the correct time around 11 but that never stopped the learned and pulling apart. I had hair everywhere and all the pred in the world didn't stop it.....it was up to 20mgs at one time. The docotrswould play a game of what hair them pull the gown up and chart the growing chea pet. At 11 I shaved the hair off because an older friend told me that's waht her mother did. The kids on the bus would tease the crap out of me because of the excessive hair on my arms and face but yet the blood work was fine and the genital exams didn't note anything different. I and others were there for the students and then data was gathered to learn about CAH.My own Endo was in charge of the students but I was just a kid and dealing wit a condition that really wasn't know. I had primary care doc two years ago - a good guy and good caring doc llok right at me and state that i scared him becuae he had no idea what was up with CAH. My primary now is the sweetest man and is a talker like me but doesn't really know about CAH and what he said about the surgery really made me do a douple take but her is sincere and forth coming - perfect enough. I love my Endo but I don't want him touching me because of all the pawing in the past from others but one the other had the gastro docs? I'm cofortable with whatever they do because i think they are more outgoing then endos and I can relate to them more and although I have gastric conditions - it's not like the CAH where you needed help withthe condition even though you want to be fine. I think anything that I write about could apply to any medical condition. I have a thyroid condition and I was so angry that yet again I have to rely on some endo. It's like thank you but stand over there because you people just way to quiet for a nut like me .....One resents being forced into something that your not but you ned them anyway. When I had my gall bladder out my Endo came every day to the Hospital- even on Sunday. He came every day and grummbled at his office that he felt used .....imagine that lol for 18 years I helped students learn about CAH and he feels used hummm but he also said in a hopeful voice that " I came every day " One can be critical because you look at them and expect them to fix it and sometimes you can't fix it and all you can do is cope.
I do feel as a child was expected to deal with things that even though the best effort was made to do it in a child manner that in no way hese things a child needs to deal with. Ped endos do look at things by a case by case basis .Even back then the urology Dept stated I could wait and testing from the pyche dept noted I was a year ahead. I wasn't upset with how I was born....A kid likeds themselves but in order to fix the havoc the adrenal gland caused surgery really was in my best interest. The fact that my brain wasn't in line with that is something I've worked on to find peace. Those reasearches can bit me because this isn't a she plays with trucks thing. A sale at Coach ? get out of my way. When I was drinking and off from work at 4pm - i told the company pres to move it because I needed to go- Lucky me he didn't hear to well. I wish they would study the agressiveness. They were slicing and dicing plus peeking to make sure I fit into the girl. Where yes a girl but needed to be me. Every peek takes away childhood. But Mom is you need this done - to make sure you look normal and hard because didn't think you were normal before. I wanted to be so their good and normal that I didn't even breath.
Dear Cherry,
Thank you.
Hi J!
I get where Cherry is coming from and you also. I'm sorry but I don't have any ideas that would make anything better. I liked how I was born.....sorry. Not a big fan of the intersex society but I just talk from my own experinces. Doctors were observing CAH and learned to help others because of me and the rest of us w/ CAH at the hospital
whatever you do will be the right thing for you and yours.
If your not up to giving her a Knock out drug and Ohhh do I wish I would of had one - Don't think anyone should have to remember any of that but I do konw that the doctors from the bottom of their hearts meant well. They thought and I respect that they thought the way THEY conducted themselves was less traumatic and it just might of been compared to the era before. Don't know J maybe a sheet would of made all the difference ...who is to say? I can only speak for myself.
in a fun note : )
I just think Dr. Poppas is really nice looking. Though about going to the cares thing just to see if those pictures do him justice. J ...I'm fun and actually a little superfical.
