Congenital Adrenal Hyperplasia

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re: re: re: CAH at 22
Sep. 29th, 2006   12:50pm

I actually did not hit puberty until I was about 15-16.  (I am not sure if this is condition related as my mother was about 14-15 when she started) .  My physicians were not concerened with that.  My little sister is the same as me with the salt wasting form of CAH.  She was also a 'late bloomer".  As for problems durring puberty I do not recal any.  I was very active so I did not suffer from sever cramps like most of my friends did.  As for the tom boy comment.... both me and my sister were tom-boys.  We have two brothers.  But I found that durring grade school all the girls were amazed as how I was able to relate to and get along with all of the boys.  They never threw their boogers or silly things like that at me...probably because I was the one who started it!!! But seriously..I was able to get along with the boys in a very healthy and non sexual relationship ( I did have crushes and all of that stuff) all through school.   I enjoyed playing with the boys much more than playing with the girls because they were simply more fun.  I had two girlfriends for my whole school life but they never played with us at recess because they simply could not catch a football for the life-of them.  We are still best of friends.  When I was in high school I also developed some really close girlfriends apart from my boyfreinds that I am still very close with.  I think by that time I was on the same playing field with them.  But still some of the othergirls were simply amazed as to why the guys would always ask me and not them (even the girlfriends of my freinds)  to go with them when they were going 'offroading" or paintballing.  Both my sister and I have always been in hetero relationships.  She is an excellent hockey player who played with the boys up until she was too small for them.  She is very tiny but very talented.(it was her choice to change leagues she only weighed about 103lbs and the boys were 130+)  She had to join the girls but to keep her interested she played with the girls that were much older than her.

My advice is love her for who she is and let her be who she wants.  She will excell at what she chooses. Give her opportunities that will stimulate her aggressive side but also provide her the opportunity to alow her to express her creative mind with cultural activites (piano, art, karate, dance etc).  Encourage her to socialize with everyone. It will alow her to feel more comfortable with herself.  Keeping compliant on her medications is a must.  When those are out of sync..good luck trying to deal with the individual.  You do not have to parade around the fact that she takes medications, have her wear a medical alert bracelet and leave it at that. She will appreciate the fact that she can take responsibility on her own to take her own medication without others "peering in."

ME




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