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hello i am new to this message board but i could not resist to read you post. first off my daughter was born two years ago with cah salt wasting and she is a prader 5. i love her dearly and no matter how she feels i would never want her to feel "in the dark " or feel left to deal with her self. i would also like to say that my daughter is very rough and lover guns and cars and basketball, but she IS 100% BEAUTIFUL GIRL! Im not sure what you meant about that but i am very curious. You must know alot more than i do. please if you are comfortable enlighten me.