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Hon, you keep going on and on about this and was wondering if you even had made an appointment with a urology surgeon yet for your child?
If you child is this old and was born a prader 5 like I was then surgery is needed because in the not to distant future- puberty is coming anyway and period blood does need a place to exit from freely. What you are writing about now is medical.
All the best with whatever happens. Sweetie this is the internet and with any medical condition - each case and each family is different in how they handle anything.