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I have managed the ups and downs of CAH for 62 years coming up from a time when there few to nonexistent endocronologists. Parents in denial. Frustration in not knowing what was happening to me. God blessed with 2 children (1 full term heavily bruised and hemoraging and the other 6 mo 2 lb 5 oz which dropped to 1 lb 13 oz at a week. People with family with CAH do not know how lucky you are to have the internet, weblinks to others and endocronologists. I am having painful knee problems, with being a diabetic, but with God's blessing will survive this day. May God bless each and every one of you