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Hi, I I'm the mother of a 9 year old girl who was diagnosed with cah and 21 hydroxy defiency. i know your feeling of being shmae of this disorder. when my daughter was born i was 23 and this was my first child. When Chloe' was born at 24 weeks premature she weighed 2lb. I was not able to see her they took soon as she came out at that time they did not know what was wrong other than her being premature. That night after all of my family had left the chaplain , 3 doctors, 4 nurses and a social worker came in my room and after they explained her condition which sounded horrible especially when someone tell you they don't know if you had a boy or a girl then they tell you your baby may not live thru the week of course i was upset ,scared and in disbelief. Then to make thing worst they wanted to sign her over to some childrens home where the claim they could take better care of her, which I am glad I did not. She was the only known case in our area . I almost lost twice to her condition. Now she is doing better , but she still does not totally understand her condition. She had corrective surgery on her 1st birthday and they did tell me she would probably require another later in life. I did not kown anything about this condition until I had her I am trying to learning everything I can , because I am just scared of the future.
