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re: re: re: re: how do i teach my child to talk freely to her friends about CAH Feb. 13th, 2008 11:45pm
aimee ,
Ok ive thought about it your right with "its just a bracelet" i understand what you are saying and you would know more about this condition than me as ive only been dealing with it for 11 yrs and im finding new things out all the time it is a constant learning journey for me, one thing i have picked up on this site is that theres a lot of older people with CAH that have had a terrible experience one way or another but this is the 20th century and my daughters have a fantastic relationship with thier doctors and even my younger one whom has had surgery with more to come has watched family members go through horrific operations and would say gee im so lucky iv only got cah - i looked at her and didnt know what to say those words came from her mouth and yes shes only 9 but a smart 9 i dont know how shes going to think when shes older and i dont know what effects her surgerys going to have until shes older but either way she will always have a loving family to support her as i said before we learn as we go so sorry if ive affended you, ive taken SOME of your comments on board.
