Hi Barbara-
Saying I've only got CAH is a wonderful coping mechanism.
The pediactric endocrinologist and Chief of Pediatric Surgery thought we had a great relationship as well and this med student even wrote I was bubbly and out going in my medical records when reality I was trying to please adults.....adults would say i had a great relationship as well because they needed to sleep at night. No child should have what they were born with striped away and really why the hurry. I got a formal letter of apology and I hope sincere medicine isn't always right but it is forever changing.
I understand what you are trying to say and not to worry : ) your kids will not feel like me.
When someone makes an attempt to share what it feels like to have CAH we are always cut down as this or that and I think it's unique to CAH as I had cancer 4 years ago and didn't find it this way nor with the Hashimoto's thyroiditis or the Celiac Sprue either. There is this under current about having kids which is too much pressure.
I tried to please everyone but me and wish that I would of been left alone and not had the "wonderful" doctors checking on their work. I want the genitals that I was born with back but that isn't going to happen - I have to live and make the best of it even though gender is difficult.
"this is the 20th century" ? maybe I read this the wronge way but this is the 21st century. The 20th century began on January 1, 1901 and ended on December 31, 2000. The 21st century began January 1, 2001 and will end December 31, 2100.
My mind was wired to the genitals that were taken and that has nothing to do with how good or bad surgeries were or are now.
You can't offend me. I just thought that your kid's answer to the braclet question was brilliant.
Good luck
