Congenital Adrenal Hyperplasia

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re: re: KATRINA
Feb. 26th, 2008   11:10am

 This thread was just pleas from us that have been through it and wasn't directed at anyone.

 When we try and tell our stories or pleas there are always those that try and devalue what we say.

  Not one of us has ever done this when a parent goes on how wonderful they think the surgery they just had done on their child is.

The surgeon that I had 20 years later would tell me that "Medicine isn't always right but forever changing"  Nurses have told me that "Nobody really knows"

Yep, I've thought about something different say .......pelvic ultrasound but was told by those that count in the CAH community that things like narrow man -made canals really a thing of the past and with  "new surgery" this doesn't happen ..yeah.

Anyway, I answered the rest of this in the post at the top of the page. I don't think you care for our pleas anyway. There is no controversy.

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