Congenital Adrenal Hyperplasia

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re: re: re: re: re: re: KATRINA
Feb. 27th, 2008   8:52pm
re: re: re: re: surgery check before puberty (question from Main Board)
Feb. 26th, 2008   10:59am   

 Dear Katrina-

After the nice surgeon checking, I had blood clots anyway  that were the size of small livers that did push them selves out and when I asked this female Endo because I was worried- she just replied "Oh that is just mucus" She wasn't concerned at all.

One time I had to stick my finger in there to break the mucus and another time the pressure force blew the blood blob on the wall paper.

If you think that is to harsh on the area then what about later for sexual intercourse.

Like you - THE man (surgeon) needs to review how his vision is doing if that is his plan but others don't.

And if the area is to small then what?.....more surgery?  dialation? - I had to slide down on the surgeons finger but others got the metal rods and we were just 11 to 14 years old.

I was told surgery was better now and no vaginal stenosis (narrowing of the man-made canal) or the need for dialations. So all this is interesting. 

Dear Katrina-

I thought writing that you don't know how to read might make you think and I also could of written that you aren't getting this.

At time I don't read the whole picture of things either and I mean that not just reading the words but the concept or meaning of what I was expressing.

Someone wrote a post on this open board that is marked that no matter what the endocrinologist always is the person with the correct information to follow but we with CAH and those associated with it also like to ask infomation of each other.

I gave my opinion like it was asked and others gave theirs. The poster moved this to the controversy board where I again stated my one opinion and experiences why in relation to CAH and not another medical condition or accident. Also, I didn't down grade anyone else's post.  

Please don't compare other medical issues or accidents to having CAH. Because each is different and CAH will never be thought of on its own and first. 

I copied my last post to this topic here that was in the other thread as i felt that it answers completely why I answered the way I did.   

I do feel that what is done to us meaning CAH and not any other example  pushes the line of medical ethics in some respect.

Please review again my other posts in the threads surgery check before puberty and also on this thread.

Someday maybe people with CAH will be allowed to give their opinion and experiences the same way people with other medical conditions are allowed to.  I'm allowed to express my feelings too.

I'm sorry that 100 children a day give you insults as I worked with children/teens but they told me their thought ,fears and hopes. I treated them with respect.  

Children mirror how you treat them.

 

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