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To begin, my comment about teenagers making insults was sarcastic, in return to your jab about my reading abilities. I do treat young people with a great deal of respect, as I realize they are our future. It seems typical of you to make jumps in judgement when you respond to me. Maybe my personality just brings out the best in you. : )
I still don't understand how you expected me to respond to the clotting comment. So, I won't. In regards to your question about advancements in surgeries and follow-ups; I can tell you that we were never told that our daughter would be free of follow-up appointments or surgeries. I'm not sure if thats what parents are being told now, but eleven years ago we knew follow-ups would need to be made.
I did as you requested and looked at your posts about appointments before puberty. You seem to be very inconsistent. Sometimes you talk about the guy with the polka dot tie, sliding on your finger, how emotional it all was, and other times you are telling people to do whatever their doctor says. I think I can read between the lines enough to know when you say the latter, you just feel like you aren't being heard.
People are listening, Aimee, and you have a good message. My whole point in the beginning of this was that when people say things like, "My daughter understands exams are a normal part of a female wellness check," and you respond by saying things like, "My parents thought I was alright with exams when I was eleven too," you are lumping yourself with other people and drowning out their voice.
Is it alright if there are people with CAH who do not feel violated? Is it acceptable that my daughter would consider it normal? I don't think the question is can parents understand your view, because I feel we all try, but can you understand another side? Could you ever believe there are people who have had similar experiences that don't think about them all the time or even ever? Or, do think about them, but do not feel violated in anyway?
I also never compared CAH to any other condition. I fear for my daughter, but not because she has a trained doctor examining her, I fear because she has a life threatening medical condition! You just told me I couldn't understand how it was to have people looking at my vagina at the age of 11. I wanted to make it clear that I do understand, it just never mattered to me. Not one little bit.
Blanket statements and generalizations can be dangerous. THAT IS the only point I meant to express from the beginning. I was bothered that the orginial poster was told both exams before puberty and the electrode thing were immoral and unethical. I think they are two seperate issues and should be treated as such.
