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re: re: re: Truth's comments Mar. 11th, 2008 5:28pm
Here's something... I know some of the people assume that having the surgery done when they were younger was the worst thing to have been done to them. However, two things - one our parents often made the best decision they could have under the circumstances. As the doctor says in the video THINGS WERE DIFFERENT. Parents now have a lot more information than they had when we were babies. I'm 26, have SWCAH, had the clitoral and vaginal reconstructions and still feel that my parents made the best decision they were able to at the time. They were under a great deal of stress from both my birth and problems, had to go to another province for solutions and were given the only information that was available to both the parents and the doctors at that time. Secondly, just because they made the decision for me.. doesn't bother me. In fact, after years of being told that any trauma could potentially result in my death, I'm still scared to death of having the second reconstructive surgery. Not every opinion had on this board applies to every parent or child that is affected by CAH. Not every person is affected the same by CAH. If you're bitter over the decisions made without your input than talk to someone. Don't make every new parent feel horrible because they are trying to do the best they can in this situation and where the doctors, in some cases, are still learning themselves. I'm sorry for the rant, but I'm also sorry for the parents who are made to feel horrible over something that has probably sideswiped them.
