Congenital Adrenal Hyperplasia

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re: re: re: re: re: Truth's comments
Mar. 15th, 2008   6:32am

No-one begrudges you the right to feel 'bitter' over the fact that you are not happy with the decisions made without your consent. Yes, this is a support board and no-one could argue that all sides of the story indeed, should be presented. Although you feel that you are "verbally bashed" by others on this board, I have also read many, MANY words of positive encouragement directed towards your posts as well.

I think rather, the point is that these two girls have written that they have a positive outlook on life (despite the decision their parents made), and you still come along and manage to spin negative outlooks on their perspective of things.

Why can't it be that we read your perspective, without them coming along and redirecting your posts.....and read of their positive outcome and just accept it for that, without you coming along and redirecting it negatively. It doesn't seem fair to 'hijack' their comments and turn the whole thread around from what it was supposed to convey.

Lately, you are frequently mentioning the difference between those that actually have CAH and those that are parents of CAH. For those of us that are parents, no we don't pretend to understand what you went/ have to go through. We are simply here on representation (to the best of our ability) of our children and bettering their lives as most of them probably aren't old enough to represent themselves.  Because we don't actually have the defective chromosones, that doesn't make us any less worthy to  be here.

Anon 2




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