Congenital Adrenal Hyperplasia

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re: ...to Truth
Mar. 16th, 2008   12:54pm

I wrote because I know what the vaginal stenosis (narrow canal) feels like to deal with and I've had a small amount of sucess in dealing with it.

 You all are reading much more into my posts and I'm just someone that is yet again going through the stenosis becuase of radiation where I had to deal with it before at age 21.

 To assume someone is bitter because they offer actual experince is well  -ok your choice of waht you need to see and nope my comprehension at times isn't the best either but I gather that someone that has been through things isn't who you want posting. I'm a can do person and no not bitter but trying to cope as well. If I was bitter then I would say I was as I'm up front and I've written before that my parents and surgeon, Endo ment well. My parents read books after books and had a whole medical library for resouce. The Urology Dept. Stated that I could of waited and my father agreeded but they went with the judgement call of the experts - My ped Endo later told me he followed John Moneys book and his work was later discredited. All of this is a judgement call.    

 I wasn't highjacking a thread - didn't know that someone with CAH wasn't supposed to post but just offering one persons experience mine that I had with the same issue at her age  and contrasting views are always welcome as in the end we have to deal with CAH,the vaginal stenosis and everything esle in our own way. I wrote because dealing with this can be lonely.  

Besty had her own ideas and views but she never put anyone else down for theirs.

Medicine is a judgemnet call.

When I wrote that I was sorry ....it came from the heart as this must of been something to hear from a Dr. first and not your mother.

Yes you will deal with this because we have CAH and we can deal.

Don't let any guy make you feel less.

Nobody can make anyone else feel bad, scared or do anything without their permission.

 

 

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