My husband and I had a very similar experiance. We were told before she was born that the baby was going to be a girl. Later in my pregnancy I found out I had preeclampsia and needed to be induced. When she was born the doctor didn't say she was male or female, just put her on my chest then later cleaned her off. No one told my husband and I anything was wrong with our baby. I couldn't get out of that bed for 24 hrs. due to preeclampsia so i knew nothing about the enlarged clitoris and my husband said he didn't think it look like a male, but knew female baby were sometime swollen as newborns.
The next day after birth, the pediatrician for the hospital walked in and said "As you know their is something wrong with your baby, and your need not to call it male or female" I just lost it because I knew nothing was even wrong! A few days later they sent us over to childrens hospital and we stayed there for about 10 days. We then found out she has SWCAH. My daughter Kara Michelle is now 11 months old. She had her surgery when she was 9 months old. It wasnt only cosmetic but they had to conect one of the fallopian tubes and make an opening for the vagina. I don't know if this is something common that happens with children born with swcah or not?
My daughter has had one hospitalization since birth. When she was 6 months old she got a urinary tract infection that made her very ill. Since it was the first time she had gotten ill we were really unsure on what to do. She was vomiting her medication, we kept trying to give it to her. When I called the endocrinologist the one on call called us back and said give her the shot and bring her into the ER. Well we only live about 20 mins away so I thought they would just do it when we got there because I was crying and shaking I couldn't have given it to her. When we got their they wouldn't give it to her because they said they weren't aloud to. So they did a spinal tap, CAT scan and an MRI. They did all of these things because her soft spot was hard. Come to find out it was hard because of her vomiting and dehydration. This was very stressful.
She is doing great now, Coming up on her first birthday:)
This is the first time I have been on this website, I have been reading lots of different postings, questions & comments. I would like to talk to more people with CAH or have children with, just to know what to expect in the future, I have so many questions. Neither my husband nor I have CAH, or know anyone with it. All I know is what I read on the computer.
If anyone feels like talking please contact me at Poker7champ@yahoo.com Again my name is Heather Francis.
Thank you so much!
