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re: 4 day old daughter with CAH Jul. 16th, 2003 2:47pm
Hi Peter. My daughter just turned 8 on July 11. She is very smart, beautiful, funny, and has CAH. I remember when she was born, I thought I had another boy. My ob/gyn said, "Oh no, she just has a swollen clitoris", 12 hours later, after all day with not seeing hide nor hair of a nurse or a doctor, the resident pediatrician came in and informed me in 12 years of practicing medicine he had never seen anything like this, and I quote, " Quite frankly I do not know what your child is", I began to cry, because in my heart I knew it was much more serious than a swollen clitoris, and the inhumane doctor confirmed it. (Honestly, he should not be practicing medicine. Either he is a really ignorant doctor and doesn't read medical journals or my daughter is the only child with CAH). Anyway, he told us he was sending us to another hospital across town via ambulance because they had no idea what to do.
As soon as we walked in we were greeted by an endocrinologist that saved the day. Things will be easier to process as your daughter gets older, and soon it will become just as routine as any other aspect of your life. Just make sure you are surrounded by doctors that want to know more about their profession and will study, or that will refer you elsewhere when they just don't know how to help you. Be thankful to God for Modern Medicine, because just in the last 8 years it seems more people have learned about CAH and are more accepting and caring. Good Luck to you, and if you have any questions or you ever need a shoulder to cry on, please feel free to contact me. The first time your test results come back whacked out and you feel like a terrible parent, just remember- You are not alone. You are not a bad parent. And you will make it through this. God Bless.
