Congenital Adrenal Hyperplasia

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re: re: re: cah 17 hydroxylase deficiency
Jan. 8th, 2004   1:50pm

 Hello all!

 I am a grandmother raising my granddaughter with CAH. She was diagnosed at 13 months. She is now three and a very Active little girl. She hasad several surgerys and seems enjoy life to its fullest (as much as a 3 year old can)LOL . She is VERY moody and does not sleep well at night and has night terrors? Does this happen because of the meds? I have all the faith in the world that this little girl will excel and survive at any aspect of her life. She lost her mother at Five months and has had a very rough first few years . But with Gods help and a positive outlook and life from all her family she will....WE will get through this together! My love and support goes to each Cah caregiver as then is a true act of love and want of making our loved one to be  all that than can. We are blessed to have this outlet and site that we can communicate and share our experiences, joy , sorrow and knowledge. We will help each other and become better people for doing it !

                                                          Thank You Cheryl Lane

                                                           Mitzi's Grandma

Cheryl Lane




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