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hi im a 15 yr old girl (nearly 16) from Buxton,Derbyshire (england) and i have had cah all my life. i find it easy to cope with because very often i dont notice that i have it. However, up until the last couple of years, i was told very little about the condition. i have the salt wasting form of cah and all my parents ever told me was that it just meant that my adrenal galnds didnt function properly and that my body couldnt produce salt. It was only recently when i went to the hospital for a regular check up that i realised the extent of it. After that appointment my dad had no choice but to tell me. i found out that i had to have surgery wen i was younger because of enlarged gentalia. my dad also told me that he asked the doc about me wen i was born (if i was all girl or not) and luckily i had a scan and it confirmed that i have XX chromosomes and all female internal organs. another thing that is concerning me about cah is sex. i have been told that i had this operation wen i was only a couple of weeks old but i also have to have an operation pretty soon, before i can have a proper sex life. has anyone else had this problem and if so could they let me no?
just recently i am finding it very hard to cope with life. i have gcse's coming up in a few weeks, i am coping with cah and i have family problems. i have considered taking my own life in the past and i was just wondering if having cah can make you act rationally, more so than if i didnt have it. i.e. considering suicide!
