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re: Anyone near Wichita, Kansas or in Kansas Sep. 28th, 2005 1:49pm
Hi Liz, I am always reading up on CAH and ran across your message. My son, Jacob, 20 years old, was also diagnosed with CAH at an early age; we did not think he would make it. I live in a state where they DO NOT test for this. – Which is KANSAS? We are from Liberal. We were very lucky. His first 8 years were the toughest. He is in his 3 rd year of college - he is going to Culinary School. He is a black belt and has been in karate since 5. We have 3 Karate Schools in Dallas, Texas. And he is an Instructor.
Jake had all of the side effects, too, acne, weight gain, etc. Jacob also takes Florinef as well.
Anyway, just wanted to say hi –
Who is your endoc? in Wichita. We use to drive there when Jacob before we move to Dallas for Jacob's appointment. Dr. Menking