Hi Adzhan & Saiful
Nice to know of other Malaysian parents. We need all the support we can get. I have 3 kids (2 with non salt wasting CAH). My eldest son 10yrs, my second daughter, 9 years and my baby girl 20 month old who is the only non-CAH affected. Alhamdulillah.
I found this site and other materials on the net, incredibly helpful when i first discovered about CAH 7 years ago. The contributors and other parents here help me come to terms with my kids' condition. Yes, i do agree with Adzhan, that here CAH is far from being understood and is often stigmatised.
Even the media has not played their role in the recent case of gender classification for the baby born in Sg Petani hospital. I am so sad to hear that the parents have decided to keep the baby's gender as male even after tests have confirmed the child as female. I think the parents need support from other parents to help understand and accept the condition better, so that they can make informed decisions about the child's future. Somehow, not all doctors can give advice on this subject. Even my first encounter with a pediatrician at a well known private hospital left me with such disgust when he looked at my child as a 'freak' and suggested immediate surgery instead of immediate streoid replacement!!! Since then, we have been searching and found a wonderful ped endo - Prof Rahmah Rasat at HUKM Cheras. We love her to bits!
Here is my personal email add if you wish to contact me : sitimaheran@yahoo.com
