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MELISSA MY SON WAS BORN WITH CAH JULY 24 1993. I DIDN'T KNOW UNTIL TODAY THAT THERE WAS A WEBSITE.UNTIL NOW I'VE NEVER TALKED TO ANYONE ELSE WITH A CHILD WITH THIS. IN THE BEGINNING I THOUGHT MAYBE I WAS BEING PUNISHED NATHAN ALMOST DIED BEFORE HE WAS DIGNOISED.WE HAD A DAUGHTER BEFORE HIM AND SHE PASSED AWAY WHEN SHE WAS 2 MONTH'S OLD HER NAME WAS TARA I WONDER IF MAYBE SHE HAD IT TOO.SHE WASN'T TESTED BECAUSE I NEVER HEARD OF IT.I KNOW NOW THAT IT WAS NOT A PUNISHMENT BUT GOD TRUSTED ME TO TAKE CARE OF A SPECIAL LITTLE BOY.WHO IS OUR CHURCH PIANO PLAYER.HE LOVES TO GOLF AND DO ARTS AND CRAFTS AND HE WANTS TO BE A VET. HE LOVES ANIMALS.I SAID I WOULD NEVER HAVE ANOTHER CHILD I COULDN'T STAND THE THOUGHT OF HAVING ANOTHER BABY BE SICK OR WORSE .BUT 5 YEARS LATER GOD GAVE ME AHEALTHY BABY GIRL WHO DOES NOT HAVE THIS . I COULD NOT BE HAPPIER WITH MY CHILDREN TO ME NATHAN IS PERFECT HE JUST TAKES MEDS EVERY DAY THATS HIS LIFE AND IT'SNOT GOING TO CHANGE YOU JUST DO THE BEST YOU CAN ONE DAY AT ATIME.MY LITTLE GIRL WHO IS 7 YEARS OLD IS NAMED SHELBY.SHE LOOKS LIKE TARA.LIFE HAS BEEN HARD BUT THE BLESSINGS OUT WAY THE BAD.YOUR FRIEND MISSY
