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hi Kelly! I have never gotten my period because my endo started me on the shot before I got to the age that he predicted that I would have it. I am now 10. I was diagnosed at the age of 4. I have just started to get around to really figuring out what cah was and what its effects were. Like yesterday we went on a field trip to a nature center and I got dehydrated to the point of vomiting. Not good. One girl fainted but thankfully I didn't but i know i could have easily fainted cause i noticed my blood sugar went way down and I told the teachers. So I was okay. I live in Northwest Arkansas and I am an only child. Two of my great aunts have it but one of them didn't get diagnosed until she became pregnant. So thankfully they caught mine before i got any older. None of my friends at school understand what it is so sometimes it pretty hard. Also cause I'm 4'11and three quarters and am not really skinny.