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I also have a 4yr old with CAH. I am still learning about CAH every day. My daughter was just diagnosed a little while ago. The main board has a lot of info. on it and a lot of people has suggested to go to the web sit caresfoundation.com they will help you out too. Maybe we can help out each other and try to learn about this as we go along! I will be in touch if you would like to talk more about are little ones. Any info is helpful. Talk to u soon.
