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re: a get togeather for CAH children& families Dec. 3rd, 2006 5:41pm
just wanted to know did you get your support group together. i think that a very nice idea. i wish i had one where we live, we are all alone here. my son is the only one in our town where we live that has swcah. his doctor said he is the only one since 1977 that was born with swcah so you know i never heard of this. so i had to learn in a hurry as to what to do. but we was bless with a very good doctor,but we have to travel over a hundred miles to vist him.
