this is not about having cah but i have a son with swcah,iwas reading on the message board about the lady who lost her friend to cancer first let me say how sorry i am on the lost of your friend. i have a sister who is dying from a rare form of lupus,the doctor gave her nine months to live at the first of the year,and now she cannot get out of the bed. we as her familynow have to give her a bath as she is to weak. the doctor said that it run in my family because i have another sister with it . lupus effect people in many ways one have bad kindey the other have a bad heart and lung,they think that mind will effect my brain but the point is be there for your friends and family you never know when they will leave,my sister talk about the old dayand what we did as we was growing up, she said to keep the good time in mind when she pass on. she ask me to let her go as i am trying to but is hard. so girls and boys with any form of cah please take care of yourself because you never know when death will come. love every minute of life you can. let your parent and friends know that you love them. every day i let her know that she is love by her family. she is a blessing to us and we love her very much. for my sister i will always think of her. hurting in my heart