I would like to talk to someone that has gone through (and maybe still going through) the same experiences that I  have, and make  a friend to have an online- friend-relationship.  Most people on here have been diagnosed later in life whereas I was diagnosed at age 4.  I am now 24.   I have never met anyone with nonclassical CAH and I would at least like to talk to someone on a more personal level.  Here are a list of things that I have gone though in my life.  I am thankful that I was fortunate enough to be born with NCAH/LOCAH rather than SW CAH. I would also like to say that I am a very feminine woman and I am very thankful of that also.

• diagnosed by the childrens hospital in birmingham at age 4 and begain cortisol
• weight gain immediatly followed treatment of steroids
• signs of pubic hair around age 2
• apocrine sweat glands became active around age 5 (normally become active at puberty)
• full pubic hair between ages 5 and 6
• started to see a "peach fuzz" on upper lip at age 7
• stared my period at age 7
• lupro shots at age 7 to stop period and help with overall adult height
• bone age was 16 years old at age 8
• weight gain continues
• I stopped growing at age 10 ( I was very tall for my age though as I got older though, all the kids started getting taller than me)
• a slight fuzz of vellus hair begins to appear on my chin and jawline at 10
• the hair progresses to terminal hair (coarse hair) about the age of 14
• put on spironalacton and b/c pills to stop the continuation of male pattern hair.  treatment did not work to do anything but regulate my periods
• hydrocortisone treatment was then changed to prednisone. 
• very depressed (most adolescents are at this age, but my depression was due to the quick hormone fluctuations)
• quit taking birth control pills
• no regular periods.  maybe one period a year.
• I dont think that was taking my medicine correctly.  I was still a teenager and very resentful to my medical condition and did not think that it (the meds)would help me anyway.
• sexual feeling for the same sex begin   
• I begain going to see DR. AZZIZ for 3 years. HE WAS THE BEST. But now he moved to CA and I live in AL. He has written several books on the subject of CAH and many articles for the cares foundation.
• ok so lets fast-foward
• I am now 24 and overcame the weight issue.  I weighed about 182 and i now weight about 110 and stand tall (lol) at 5'0...i like being petite.
• I have no insurance and I have not seen an Endo in almost 2 years. The last doc I saw did not even give me the results of my blood work.  He is an endo but he usually treats diabetes, cushings, and addisons patients.  Therefore, he is not familiar with my medical condition.  (he is the only endo in the area)
• I buy my med off the internet and I have upped my prednisone from 2.5mg/2xday---> 5mg 2x day.
• since then I have started my period =) but I dont know if I am ovulating.  I want a baby with all of my heart. 
• my clitoris is still slightly enlarged(less than half the size of my thumb.)
• I shave my face daily..my chest and my legs and arms I shave every-other-day. 

I know that was alot to read.  I just need someone that can relate to some or all of the problems that I have faced.  It would be awesome to talk to someone that has.

 

thanks,

Shay

ps. please email me at my husbands email if you would like to be my freind.  chrisn07@bellsouth.net.   he never checks his mail there because he uses his aol.com mail.

                                                                                                                 

Shay: I need a friend that has LOCAH and shared the same experiences as I have. (Nov. 8th, 2006   9:00am)
Anessa: re: I need a friend that has LOCAH and shared the same experiences as I have. (Nov. 12th, 2006   1:59pm)