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Yes my son who has CAH, had this exact type headache for over two years, in fact he suffered headaches from when he was little. It has been proved in his case, that these were due to a lack of cortisol, and now he is on the right dose of hydro, given by continuous infusion, unless he is unwell, he is headache free',We can tell when his dose needs adjusting as he develops a headache. However saying this, have you had your sinuses checked (x-rayed?)
