Congenital Adrenal Hyperplasia

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re: re: re: very abnormal 17-ohp results. Please help!
Jan. 6th, 2007   10:27pm

Make sure the doc that you are referring to is an endocrinologist.  I know I have a mild case of LOCAH since I was able to live so long with never an adrenal crisis and I have genetic testing twice.  My stimulated OH17 was 3130.

People are over treated all the time, so be sure to get a 2nd opinion, especially since the doc did not seem to explain things so well the 1st time.

I believe Prednisone is the last of the 3 treatments.  Most adults are put on either Cortef or Dexamethasone lst and then Pred. if those other 2 don't work.  However, please do not take my opinion as truth!!

 

natalie




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