Hi.
I went in for just some general testing to see why my cycles hadn't returned after weaning my first child almost a year ago...I come from a long background of women in my family with very irregular cycles so it's a wonder when I got pregnant and on Ortho Evra to boot.
I was tested for PCOS mainly along with a few other things and the ONLY abnormal results were my progesterone levels. It came back as 281ng/Dl without my having cycles.
In order for my GYN to refer me to an Endo, I needed to see my PCP (fam doc) to get that. They drug their heels and 2 months later I went in to see them so they could redraw the 17-OHP and get my referral.
2 days after that I went to see my GYN for my yearly and lo and behold I am just shy of 8wks pregnant (this was 4 days ago)....surprise..pregnant when I was told no way jose without drugs and help...
Now, they called to light a fire under my PCP to get my Endo appointment and I have it tomorrow at 930am but I believe it's just a meet and greet. My GYN did mention that with my levels that high they were thinking it may be late onset CAH and it has me freaked out...nobody seems to have ans...everything I have read online says that when pregnant treatment needs to start before 9wks and that is NOW.....
I sailed through my first pregnancy..Lost 20lbs the first few months, gained back about 18 of them and my little girl was an ounce shy of 9lbs...biggest on both sides of the family by at least 1.8oz....but she was in perfect health..got a bit stuck coming out but nothing serious like Dystocia...
Now I am hearing terms such as CVS, Amnio, C-Section etc and I know all the risks of that and I am freaked out...If tomorrow is just a meet and greet what happens then???
The only hormone disorders in my family are Thyroid related (all the women but me....) and that's that. My mom had to take Progesterone to stay pregnant with me but went through all the testing and such to figure out why she kept M/C and CAH was never mentioned....
Everything I find online is all medical terms and mumbo jumbo....
I'm just feeling very lost and confused.
They did take another 17-OHP level 2 days ago and it came back at 381ng/Dl and the lab just marked it as high.
My PCP mentioned the ACTH testing and such but can you do that if I am already pregnant and what does that entail....I just want my baby to be healthy.....and feel like I can't be happy about this until I stop worrying about what I am hearing and not understanding....
Thanks so much!!!!
