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re: I'm a newcomer searching for help Feb. 10th, 2007 9:48pm
Hi there. I understand how scared you and your family must be. Please know that there is a LOT of help out there. Below is the phone numbers for the CARES foundation. They are an imense help. They have people on staff who have CAH and can tell you a lot. When I first called I was afraid to ask questions but was assured by one of the gals that answered the phone that there is no question she hasn't heard. So PLEASE CALL. They also are a great resource for............... really everything. THey can tell you what doctors are the best in dealling with CAH kids and adults!!! So please call and this will help you tremendously. The first time I called I spoke with them for over an hour. THey never rushed me off the phone and are just so amazing.