Well, that explains everything. Your blood cortisol levels are normal or high because your urinary cortisol is low, because your kidneys aren't excreting it normally so that it accumulates in your blood. That would make CAH very very likely.Think of it like one of those thermos containers with an open top and a little drain-tap at the bottom. With a normally healthy person, they pour a cupful of cortisol in the top and the drain-tap is open all the way so a cupful of cortisol comes out the bottom. And if they do a blood cortisol test, it's measuring how much total liquid is in the thermos, not how fast it's coming and going.
But with you, you're only adding a thimble-full of new cortisol in the top, but your drain-tap is almost closed so that only a thimble-full is coming out. When they do a blood cortisol test, it says the total amount of cortisol in the thermos is as high as a healthy person's. But they needed to do the 24-hour urinary cortisol test to know that it's not coming or going, it's just sitting in your blood.
You still have CAH just like the usual CAH case who is adding a thimble-full but had their drain-tap wide open, it just doesn't look like their blood test results because their thermos is empty while yours seems to be pretty full.
Plus having cortisol sitting around in your bloodstream fools your body into reacting like the cortisol was aldosterone. They're similar as far as your body is concerned. So then you get the symptoms of hyper-aldosteronism, which I think was what you were describing before?
